04/27/15- Paula's Eating/Exercise Journal: Wednesday

by Paula (Clean Eating Expert) 27. April 2014 11:50

I received a request by a friend that is in the running for Man of The Year for Leukemia and Lymphoma Society.  My mother died of lung cancer and my brother was also diagnosed with Leukemia so this hits close to my heart.  If everyone donated $10 ( the cost of lunch, ) Mr. Maier could win this honor and I would feel like I helped a reader, and maybe helped someone like my mom or brother.  Help if you can.

Friends, in 2002  Scottie C. Maier was diagnosed with a non curable form of Lymphoma and he is 6 years and counting in remission! It would be great  if you could him as he was nominated for Leukemia Lymphoma Society's man of the year! Click here to read his journey with the society and donate. Every dollar counts!

Man & Woman of the Year (Cincinnati)

 

Welcome to my Man of the Year home page!

  My involvement with the Leukemia Lymphoma Society is rather intertwined. The bottom line is right now, if not for what the Society does and their mission, I would be in my seventh year of a twelve year death sentence. I have Follicular B Non-Hodgkin’s Lymphoma. It is classified as an incurable form of Lymphoma.

My involvement with the Society started in 1993 ;this was the first year of Team in Training in Cincinnati. I was asked to participate in a marathon for a group called the Leukemia Society. At that point they had not begun supporting other blood related cancers. It was a cancer that I knew nothing about. I found out that it was the number one killer of child related cancers, with a survival rate of well under 50%. At the time, by the grace of God, my children were all healthy. I could not imagine how devastating it would be to find out one of my children had such an awful disease. I decided to run the Columbus Marathon in honor of a young man, Justin Ashcraft, who had this childhood cancer. The Society consisted of an Executive Director, a Business Manager, and a Board of Directors. We kept the money we raised in a cigar box and turned it in at the end.

Justin’s involvement in the program depended on his health at the time. If he was healthy enough to attend the fund raising events he would. I ran 19 marathons in his honor. He finally succumbed to the disease after a long tough battle of Chemotherapy, radiation, stem cell transplants and anything else that was experimental at the time. My involvement with the Society grew every year as we saw advancements in the treatment. I became co-chairmen of Team in Training and was the first recipient of the Team in Training Hall of Fame. I was a member of the Board and also was appointed Treasurer for the Society. They would bring me the checks to sign and I did so with great pride knowing the strides we would make in patient aid. The money raised over the years helped fund research programs that helped increase the survival rate of childhood Leukemia to nearly 90%.

The Society has grown and so has their support of blood related cancers. They are now The Leukemia-Lymphoma Society (LLS). In 2002, I had what seemed to be an ulcer. It seemed everything gave me terrible indigestion. It was not an ulcer, but I was told over the phone, as I drove to work that is was in fact Lymphoma. I was really scared not knowing what this was and what it would mean to my future. I called my friends at the society and asked for information they might have. By the time I got home that night there was a box of information sitting on my doorstep. Information that the money Team in Training had raised to help produce. I guess the bottom line is I had paid forward. One of the Board members at the time is the renowned Oncologist Dr. Phil Leming. The Executive Director asked Dr. Leming to take my case, which he agreed to do.

Dr. Leming diagnosed my lymphoma as Non-Hodgkin’s Follicular B. There are about 29 different type of Non-Hodgkin’s and this was one that research had not found a cure for. He knew of a study being done by one of his Fellows at the National Institutes of Health in Bethesda, Maryland that showed promise, not for a cure but for a way to keep it in remission longer. I went to Bethesda to find out if I would qualify for the study that was funded in part by money from the LLS. I was told that the study has shown promise in keeping the Lymphoma in remission after a new procedure of vaccine therapy. It was really hard hearing that  it is not a matter of if it will come back, but when. It is an indolent (slow growing) cancer that would take 12 year to run its course, with or without chemotherapy. The results were the same. With the vaccine, which was literally going to teach my body to reject the cancer as it came back, I would be able to extend the amount of time of remission. The chemotherapy was very aggressive and after 10 cycles I was considered in remission. The vaccine therapy lasted another 6 months and now I am still in remission six years later. The disease normally would reappear in 3 years.

I have had the great pleasure of supporting the Society in a variety of ways. I have gone from running for Team in Training Hero’s to becoming one of their Hero’s. I have been the honored patient for Light the Night. Talked at schools for the Penny’s for Patients program and have worked every Taste of the World. It is very exciting to now be involved with the Man and Women of the Year Campaign.

I hope that you will help me reach yet another goal with the Leukemia-Lymphoma society; Leukemia-Lymphoma Society’s Man of the Year. With your generous contribution the research and cures developed not only will affect my life and illness but all children and adults afflicted with blood related cancers.

http://www.facebook.com/pages/Scottie-Maier-2011-LLS-Man-of-the-Year/177838665601376

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